Fear of genetic discrimination is often a stated barrier to referral to genetic counseling services and to willingness to undergo genetic testing.1,2 As a result, when the Genetic Information Nondiscrimination Act (GINA) was signed almost 4 years ago by President George W. Bush, many felt that this would be the panacea for individuals concerned about discrimination. GINA was the first federal legislation providing protections against genetic discrimination by health insurers and employers. While GINA has granted many important protections, the law is only as good as its interpretation and enforcement. This is especially true in the oncology setting.
Oncology nurses interact with patients at all stages of the genetic testing process: prior to being identified as at-risk for a hereditary cancer syndrome, during genetic counseling and testing, and after being diagnosed with a hereditary cancer syndrome. Therefore, it is important for oncology nurses to have a basic understanding of GINA as it applies to patients in the various stages of identification. Not only can oncology nurses help minimize misconceptions about genetic discrimination, they can also assist patients in being proactive after undergoing cancer genetic testing to fully maximize the protections GINA provides.
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